Affecting approximately 190 million people worldwide, endometriosis is a condition where the endometrium – the tissue that lines the uterus – grows outside of the uterus in places it shouldn’t be. It is often associated with severe menstrual and pelvic bleeding, pain, and fertility issues. It is estimated that about 1 in 10 women within their reproductive years has endometriosis, though as research continues to improve, it’s believed that this number is much higher.
Yet despite it being so common, endometriosis is a challenging condition to diagnose; statistics show it can take up to 10-15 years to get a proper diagnosis. This is cause for concern, as not only is that a long time to have to live with pain and discomfort, but when left untreated endometriosis can cause symptoms like intense pelvic pain, excessive bleeding, chronic fatigue, digestive issues and more to worsen over time. Further, these endometrial lesions can cause high levels of inflammation within the pelvic and abdominal areas, which can increase risks of scar tissue damage, infertility, and ovarian cancer (Coppa, 2019).
Diagnosing endometriosis can be tricky because symptoms often replicate those of painful, heavy periods, and as such it often gets misdiagnosed and dismissed as menstruation. Also, from this place, it needs to be recognized that we exist in a belief system that has normalized period pain, and perpetuates the expectation that period-related pain is something women should just accept, “deal with,” and live with.
But pain is not something people need to live with. If you suspect you may have endometriosis, it is important to listen to your body and pay attention to any pain, discomfort, and fluctuations, not only in your period but in your overall health. Distinguishing period-related pain and endo-related pain is crucial for detection and diagnosis. The best first step you can take towards getting a proper diagnoses is to recognize and understand the differences so that you can advocate for yourself and get the proper support you need.
While both can have similar symptoms, there are significant distinctions between period pain and endometrial pain. It’s important to note that pelvic pain is not directly correlated with endometriosis. While the majority of people with endometriosis do experience intensified menstrual-like pain and other symptoms around the timing of their periods, not every person with endometriosis experiences menstrual pain. It’s important to note that someone with endometriosis might also not experience any symptoms, while someone without endometriosis can still experience severe pain, cramping and nausea. This is why it’s important to note even mild changes in the types of pain or symptoms you experience not just while you are on your period, but throughout the whole month as well.
Menstrual-related pain typically occurs during ovulation or at the beginning of your period. Pain and other symptoms are often heightened during the first few days but then subside. Often managed with over-the-counter pain medications, symptoms include:
Lifestyle and diet can also affect period pain. Pelvic inflammation and gut health are both significant factors that can cause or increase pain. Consuming higher amounts of sugar, caffeine, and dairy products may cause your symptoms to become more severe, as these foods are known to increase inflammation in the body.
Endometrial-related pain tends to be a more severe, whole-bodied type of pain than menstrual pain. While typically heightened during ovulation, endometrial flare ups can occur throughout the month. In some cases, over-the-counter pain medications are not enough to help manage pain and other symptoms. Symptoms of endometriosis include:
As can be seen above, endometriosis and menstruation share many symptoms. Especially when considering the severity of them can vastly differ from one person to the next, it’s hard to know the difference. However, there are some unique distinctions that can help when distinguishing between endometriosis and menstruation.
Other signs your symptoms may be indicative of something more than menstruation include:
Coppa, A. M. (2019). What Happens if Endometriosis is Left Untreated? Retrieved from https://www.drcoppaobgyn.com/blog/what-happens-if-endometriosis-is-left-untreated
What Is the Difference Between Period Pain and Endometriosis? (2021, June). Retrieved from The Woman’s Clinic: https://www.arobgyn.com/what-is-the-difference-between-period-pain-and-endometriosis/
WHO (2021, March). Endometriosis. Retrieved from World Health Organization: https://www.who.int/news-room/fact-sheets/detail/endometriosis